Jean Kelley

“Hope” is a powerful word in the Kelley household. Jean Kelley’s son, Brian, was born in 1988 and diagnosed at age six with adrenoleukodystrophy (ALD), a hereditary disease estimated to affect one in every 20,000 boys and one that rapidly steals away sight, speech, and movement and can result in severe disability or death if not treated. Jean and her husband Jack Kelley founded Brian’s Hope, a non-profit dedicated to supporting awareness and prevention of ALD. Jean recently found success in Hartford passing legislation that adds ALD screening to newborns and is now taking the fight nationwide.